Moyamoya Disease Awareness Day is May 6, 2025
May 6 is Moyamoya Disease Awareness Day and Credit Unions Kids at Heart®, its Participating Credit Unions, and Corporate Sponsors have organized advocacy initiatives and observances in local communities.
Moyamoya is a rare and progressive neurological disease in which the blood vessels that supply blood to the brain narrow, restricting blood flow. If left untreated, this dangerous disease can cause life-threatening strokes in children and adults, resulting in long-term, debilitating impairments.
Early diagnosis and treatment are critical. On May 6, 2025, help us educate the public and the medical community about this disease. Wear blue, participate in the events listed below, print out this fact sheet provided by Boston Children's Hospital, global leaders in the study of this disease.
Local Events and Activities
To be updated as plans are finalized
- Proclamations: Substantiative, official proclamations recognizing May 6 as Moyamoya Disease Awareness Day
- Buildings, Bridges, and Digital Displays: Municipal and privately-owned buildings, bridges, and digital displays will be lit in blue or will include other Moyamoya Disease Awareness Day signs in advance of or on May 6.
- A number of credit unions will include stories in their newsletters, blogs, and on social media. Merrimack Valley Credit Union, for example, wrote an article about CU Kids at Heart Patient Partner Jackson, a Moyamoya disease survivor. Look for the use of the following hashtags: #MoyamoyaDay, #MoyamoyaAwareness, and #CUKidsatHeart.
- Workplace Observances: Participating Credit Unions, Corporate Sponsors, and area businesses will recognize the day with their employees, members, and customers in various ways, including, but not limited to, fundraising challenges, wearing blue clothing, sharing educational resources online and on social media, distributing informational flyers, and more.
- 98.5 The Sports Hub Radio Spots:Longtime CU Kids at Heart media partner 98.5 The Sports Hub will run public awareness campaign spots all day. During the last New England football season, CU Kids at Heart and select Participating Credit Unions partnered with the station and with offensive lineman Mike Onwenu and offensive guard Cole Strange for its First Downs to Fight Moyamoya Disease initiative. For every first down by New England's offense, CU Kids at Heart donated toward promising Moyamoya studies conducted at Boston Children’s Hospital.
Show your Support
To add your event or observance to our list, or to share your pictures from the day, please contact us at cukidsatheart@eascorp.org.